June 30, 2017: Flashback #15…Hope In Gun Metal Gray

Two days ago, I wrote that my records from 2016 become scarce. I told the story of how Matt ended up in the standard of care treatment arm of a clinical trial for unmethylated patients. I called that story part one of wrapping up 2016. Part two of the story from 2016 finished about two …

June 29, 2017: Forever Home

One year ago today, the pool timer broke, the air condition fizzled out, and our living room furniture was delivered. That seems like a small thing at first. That the furniture was delivered a year ago today is insignificant at best. That homeownership proved once again to be a bad investment is undoubtedly irrelevant to …

June 28, 2017: Flashback #14…Wrapping up 2016

On June 28, 2017 our story is flat. We were on hold. Waiting for a flight to Duke and a MRI that surprised everyone. In advance of that MRI the doctor at Columbia wrote, “Given how good you are doing from a neurological perspective, I imagine it will be good….” (That amazing brain, again.) A …

June 27, 2017: Perched on the Edge

One year ago today, Matt texted me a headshot for his LinkedIn profile and explained that he needed to update his current picture with one that shows him bald. He added a sad face—which I think was more for show than because he was truly upset. (Hair loss will get its own post at some …

June 26, 2017: Hope Filled Premise

On June 26, 2017, the kids had their first day of camp, I tried out a new chia-matcha-coconut pudding recipe for Matt, and H had his first t-ball practice. As far as I remember, it was an uneventful day. The kids had a great first day at camp, Matt hated the pudding, and he didn’t …

June 25, 2017: Yankees

June 25, 2017 marked another last: Matt’s last Yankees game with H. In yesterday’s post, I wrote that I couldn’t wait to get Matt in front of a doctor so that someone could (hopefully) invalidate my concerns. Today, I’m writing the exact opposite. I was uneasy about Matt going to the Yankees game, without me, …

June 24, 2017: Too Much To Ask For

I don’t remember much from June 24, 2017. Matt and I left G and H with a babysitter and went out at night, but nothing in the texts or emails from this day helps remind me whether Matt was reluctant to go or whether he was looking forward to going, knowing we were only seeing …

June 23, 2017: Flashback #13…A Minute to Breathe

On June 23, 2017, we were ten days from a MRI that would mark the beginning of a new chapter in our fight against Glioblastoma. And ultimately, it was an uneventful day that I don’t remember well. Matt went to work. G and H had a playdate and we went out to dinner with Matt’s …

June 22, 2017: Flashback #12…Initial Contact

On Thursday, June 22, 2017, I took the kids to the town’s 4th of July carnival. Matt didn’t meet us and, once again, that pinch of worry returned. The story of a year ago today doesn’t look all that different from the day before, or the day before that, except for one critical difference: I …

June 21, 2017: Flashback #11…The Pathology Report

June 21, 2017 was the first official day of summer break. G and H had playdates in the morning, and later that night, I took them to the lake to roast marshmallows. Matt decided not to meet us and that pinch of worry I wrote about yesterday was back. The story of this day one …